The Captain and Tennille…and their little Fighter Jett

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Sunday, October 22, 2006

Posted by Jett Powered Foundation at Sunday, October 22, 2006
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A story about how two people....

Fell in love, bought a beagle named Kusaba, got married, graduated from college, changed careers, went back to college, enjoyed five fabulous years of marriage, got pregnant, and had a beautiful little boy in December 2011. Jett, as they call him, is very special. He was diagnosed with Pontocerebellar Hypoplasia, a condition that will take him from them far too soon. This blog is about Jett's adventures here on earth and his lessons for us all, with a little bit of humor and fun mixed in.

What I Write About...

afghanistan air squadron airplanes american flag anesthesia august autumn baking beagle birthdays boating brain condition bronchiolitis C-Diff career cat celebration chicago choice spirits chorea chorea ER christmas cleft lip cleft palate crafts crossfit dentistry dog down syndrome dystonia ear infection ear tubes EEG ER events exercise facebook family feeding tubes fitness food friends fun fundraiser funny funny stuff gastroenterologist GJ tube glenn beck goats gratitude grief halloween happy holidays hospital humor involuntary movements iowa IV jett jett powered jett's travel plan jitteriness lake manawa logan love malignant hyperthermia marketing missouri mountains music nebraska neurological disorder nursing omaha omaha children's hospital oxygen paleo paleo recipes parainfluenza parenting parties pinterest pontocerebellar hypoplasia primary children's hospital projects pulsoximeter rhino enterovirus salt lake city savannah seizures sickness sky lanterns special needs spray tan stomach ulcers success summer surgery tetrabenazine the shanahan plan travel troops utah vacation vala's pumpkin patch wedding wheelchair winter work workout X-Ray xenazine

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