Surprises from September

I know that I have mentioned how amazing and lucky we are to be where we are, but that feeling keeps getting stronger and stronger with each day of living here in good ol' Omaha.  Although it seems a little crazy that Cody decided to completely change careers and Omaha is definitely not our first choice of "nice" places to live, I am sure that it was meant to be.

It is really hard to be down on your situation or be sad about ANYTHING when you have such great people living near you.  I seriously love our neighbors and have so much fun hanging out with them.  They are very aware of our situation and have gone up and beyond to help us out whenever we need it.  I feel unworthy sometimes to receive such great support!

Case in point…

Meet the Winterholler's.  They are an amazing couple with the cutest twins you've ever seen.  Anyway, they showed up one night and surprised us with a painting for Jett.  Are you kidding me?!  Besides this being the coolest painting ever, it also matches Jett's room perfectly.  We now proudly display it right above his crib.  

Yup…cutest twins ever.

THANKS you guys!

Another awesome surprise this month came from Cody's cousins.  They are moving cross country from California to Virginia.  Even though it was a short visit, we were SO happy to see them.  Jett was being exceptionally good and let Dayna and Erin hold him for a few minutes.  They got a rare glimpse of the comfortable, peaceful Jett!

The next surprise really isn't a surprise at all…but Jett is cute.

This is "happy" Jett before his 48-hour EEG that occurred at the beginning of the month.  Jett's neurologists wanted to know once and for all if he is experiencing seizures.  It was all done in the comfort of our own home, which was nice.  The not-so-nice thing is that Jett had to have 23 leads stuck to his head with super glue and then had to stay in front of a video camera for 48 hours.  Ugh. 

 It was horrible!!  

I did not play by the rules.  I snuck him outside twice and actually ended the study at 26 hours.  I felt that Jett had exhibited all of his "seizure-like" behavior…and he was soooo uncomfortable.  Poor baby. It took me about two hours to take the leads off of his head, but once I finished, we rushed outside to enjoy the wind in our face and the sunshine overhead.  Jett even gave me some smiles.

We finally received the results this week.  Jett is NOT having seizures!!  However, his brain activity is very abnormal.  Even while Jett sleeps, his brain is incorrectly misfiring all over the place. 

 The constant activity in his brain is to blame for Jett's dystonia and chorea (stiffness/rigidity and involuntary movements).  The doctors didn't have to change any medication, however, which was nice for a change.  

The last surprise of the month came courtesy of a friendly goat at the Omaha Zoo.  First off, if you know me well, you are probably very aware that I am obsessed with goats.  I really would like to have one as a pet someday.  Now, I'm not so sure!  

The goat tried to EAT Jett's feeding tube.

Umm…not okay, goat.

Jett gave the goat a swift kick in retaliation.  Besides that, the zoo was so much fun!  The weather was beautiful and Cody got to come with.  It is rare to have time with Cody due to his crazy dental school schedule. 

And the best surprise of all??  Uploading the pictures from my camera and realizing that Jett is SMILING in this pic!!  This is a very rare occurrence people.  I hope you are as excited as I am.

A Couple Jett "Firsts"

 This past month has seriously gone by so fast.  Usually I try to blog (keyword: "try") once a week.  I can't believe it's been three weeks since I have posted.  August has been a great month for me personally.  The fact that we have nurses to come help take care of Jett during the night has been a life changer!  I am a firm believer that SLEEP makes the world a better place.  I am incredibly grateful that we even have the option to have nurses come to our home.  Jett definitely needs around-the-clock care.  He wakes up in the middle of the night with severe chorea/dystonia.  You can read about it here if you are interested.  Therefore, Jett's nights can be pretty miserable, which can make my nights miserable.  Now that we have nurses, I am completely confident that Jett will be taken care of at all times.  It is such a comforting feeling! During the day, I can actually function like a human being (not a zombie) and take care of Jett better than I ever have.

Cody is back in dental school full-time.  Even when he is home, his mind is still "in school".  His studies occupy most of his time, but he has made it a point to not let school take over his life altogether.  A couple weeks ago, he had his first patient.  It was an 83-year-old man who has probably never brushed his teeth a day in his life.  What an awesome first patient, right?  Cody had to do a thorough cleaning on this guy's teeth and from what I've heard, he did a pretty good job!

I have stayed busy with a million different projects.  Yes, you read that right.  Me....Tennille Boseman...does projects.  So far, I have remodeled my front room, built and painted furniture (well, Cody did), and made some wall hangings.  Thank you, Pinterest!  My next project involves the sewing machine.  I'm not sure if I'm capable, but I'm going to try to make some throw pillows for my couches.  But before I turn all Martha Stewart on you, I have been thinking about teaching fitness classes again.  I MISS it SO much.  For now, I'm just THINKING about it, but in a couple months, I may actually DO it.

The pictures that you see are from Jett's First Air Show that we went to over the weekend!  The weather was super hot, but Jett loved being out in the sun and around all of the cool planes.  The show was held at Offutt Air Force Base in Bellevue, NE.  It is a short 15-minute drive from our house.  Cody was like a little kid in a candy store.  Unfortunately, we were only able to stay about 1.5 hours....which is about 8 hours too short for Cody.

We stayed long enough to look at all of the planes and watch some great flying.  Now that I have some flying lessons under my belt, I am in even MORE awe at what some planes can do and how close they come to one another.  It's so crazy!  Cody thinks he is going to fly like that one day.  Sorry, dude...that's not happening. 

 

Jett, of course, wore his "Jett" shirt

 

 

He was one tired guy afterward!!

 

 The next group of pictures are at Lake Manawa in Council Bluffs, IA.  I took Jett there this week along with a bunch of friends from my neighborhood.  There is a little beach area where kids can run around and play.  It was so nice to get out and be near the water!  However, it's also a bittersweet feeling because I want to be IN the lake...IN a boat.  Oh well, that time will come again someday!

Jett was brave and stuck his toes and legs in the water

 

Last night was Jett's first Utah State Football game!  We had a little party at our house and wore our Utah State gear.  Even though we are a couple states away, we still have to cheer on our Aggies!!  Watching the crowd and seeing the stadium made me so homesick, though.  Oh how we miss Logan.  I never thought those words would come out of my mouth, but its true.  You don't realize how good you have it, until its gone!  Logan...we'll make it back someday.  Just you wait.