A Couple Jett "Firsts"

 This past month has seriously gone by so fast.  Usually I try to blog (keyword: "try") once a week.  I can't believe it's been three weeks since I have posted.  August has been a great month for me personally.  The fact that we have nurses to come help take care of Jett during the night has been a life changer!  I am a firm believer that SLEEP makes the world a better place.  I am incredibly grateful that we even have the option to have nurses come to our home.  Jett definitely needs around-the-clock care.  He wakes up in the middle of the night with severe chorea/dystonia.  You can read about it here if you are interested.  Therefore, Jett's nights can be pretty miserable, which can make my nights miserable.  Now that we have nurses, I am completely confident that Jett will be taken care of at all times.  It is such a comforting feeling! During the day, I can actually function like a human being (not a zombie) and take care of Jett better than I ever have.

Cody is back in dental school full-time.  Even when he is home, his mind is still "in school".  His studies occupy most of his time, but he has made it a point to not let school take over his life altogether.  A couple weeks ago, he had his first patient.  It was an 83-year-old man who has probably never brushed his teeth a day in his life.  What an awesome first patient, right?  Cody had to do a thorough cleaning on this guy's teeth and from what I've heard, he did a pretty good job!

I have stayed busy with a million different projects.  Yes, you read that right.  Me....Tennille Boseman...does projects.  So far, I have remodeled my front room, built and painted furniture (well, Cody did), and made some wall hangings.  Thank you, Pinterest!  My next project involves the sewing machine.  I'm not sure if I'm capable, but I'm going to try to make some throw pillows for my couches.  But before I turn all Martha Stewart on you, I have been thinking about teaching fitness classes again.  I MISS it SO much.  For now, I'm just THINKING about it, but in a couple months, I may actually DO it.

The pictures that you see are from Jett's First Air Show that we went to over the weekend!  The weather was super hot, but Jett loved being out in the sun and around all of the cool planes.  The show was held at Offutt Air Force Base in Bellevue, NE.  It is a short 15-minute drive from our house.  Cody was like a little kid in a candy store.  Unfortunately, we were only able to stay about 1.5 hours....which is about 8 hours too short for Cody.

We stayed long enough to look at all of the planes and watch some great flying.  Now that I have some flying lessons under my belt, I am in even MORE awe at what some planes can do and how close they come to one another.  It's so crazy!  Cody thinks he is going to fly like that one day.  Sorry, dude...that's not happening. 

 

Jett, of course, wore his "Jett" shirt

 

 

He was one tired guy afterward!!

 

 The next group of pictures are at Lake Manawa in Council Bluffs, IA.  I took Jett there this week along with a bunch of friends from my neighborhood.  There is a little beach area where kids can run around and play.  It was so nice to get out and be near the water!  However, it's also a bittersweet feeling because I want to be IN the lake...IN a boat.  Oh well, that time will come again someday!

Jett was brave and stuck his toes and legs in the water

 

Last night was Jett's first Utah State Football game!  We had a little party at our house and wore our Utah State gear.  Even though we are a couple states away, we still have to cheer on our Aggies!!  Watching the crowd and seeing the stadium made me so homesick, though.  Oh how we miss Logan.  I never thought those words would come out of my mouth, but its true.  You don't realize how good you have it, until its gone!  Logan...we'll make it back someday.  Just you wait.

Lovin' on Mr. Caterpillar

Jett has been lovin' on this cute caterpillar toy lately (thank you, Devin!).  This is the first time EVER that he will grab something (well, we have to place it in his arms) and hold it close to him.  He likes the fuzziness touching his face and likes to give it "kisses".  We spent the night at the ER on Saturday night and so Jett has been needing the extra cuddling.  By the way, I hate ear infections...especially double ear infections, and I'm pretty sure that Jett does too.

On a better note, our private duty nursing has begun!  We are so grateful to have qualified for nursing in our home.  From here on out, a nurse will come to our home every night from 11 p.m. to 7 a.m. so that Cody and I can get some good sleep. This will happen Sunday through Thursday.  The word that comes to my mind...MAGICAL and words can't even describe how excited I was to go to sleep last night.  Cody was trying to talk to me and I was like, "Shhhh...you are wasting my sleep time." Jett had a pretty good night and only woke up once for the nurse.  She gave him his middle-of-the-night meds and rocked him back to sleep.  I am so incredibly grateful that he is being cared for so closely throughout the night.  Sometimes I worry that even though his video monitor is right next to me while I sleep, that I won't hear him.  This definitely gives me peace of mind and will help me care for him better during the day.

This is kind of a random thought, but even though we are experiencing one of the biggest challenges we will ever face, we have been blessed to meet some really wonderful and genuine people along the way.  Not only are we surrounded by amazing friends and neighbors, but the doctors and nurses have also become our close friends.  You can tell that they truly care for Jett and want the best for him and us.

Our Friday the 13th Story

Everyone has to have a Friday the 13th story, right?  Well leave it up to me to schedule surgery for Jett on that day!  To tell you the truth, looking back, we feel like what I'm about to tell you was a blessing in disguise...but I'm going to keep you in suspense for a minute.

This week has been absolutely amazing!  Cody has summer break and is FREE for a whole month.  Can you believe it?  I have him all to myself and I love it.  Normally, we would plan a fun get-a-way or take up some flying lessons again.  Well, with Mr. Jett, we are unable to do that kind of stuff right now.  He likes to keep us on our toes and close to a hospital.  Even though we have stayed home this week, we have made the best of it.  Cody has worked on our basement theater room and I have enjoyed organizing our storage room.  By the way, I'm not kidding when I say "enjoyed". Organization makes me happy.

We have tried to take Jett out each day to run errands, but we don't go too far.  If Jett got his way, I think he would choose to stay home and cuddle with his fuzzy blanket while looking at the ceiling fan. No joke.  He loves that thing.  Anyway, one day we were feeling adventurous and bought Jett his very first swimsuit.  We took him for a "dip" in our neighbor's swimming pool.

He tolerated the not-so-warm water pretty well, but was sure to give us some mean faces every now and again.

Now for our Friday the 13th story...it began on a cold, stormy night.  Ha!  We wish.  It actually began in 105 degree weather with 100% humidity.  Yes, a true nightmare.  Anyway, as I mentioned, I scheduled a surgery for Jett.  His current feeding tube was falling apart and was just not doing the job.  The only way to change it was for him to go under anesthesia and have the gastroenterologist (who will go unnamed) place a new one. Ugh. We dislike anesthesia with a passion.  Jett has always had some sort of "reaction" to it.

We spent two hours prior to the surgery talking with the anesthesiologists and meticulously planning the procedure so that Jett would recover better than he has in the past.  They were extremely efficient and wanted to make sure that Jett was as safe as he could be.

The surgery took place at 2 p.m. and Jett recovered remarkably well.  This was a Friday the 13th miracle!  It was now 5 p.m. and the nurses were ready to discharge us...we were seriously so excited that Jett didn't have to spend the night at the hospital. 

"Let's start him on his feeds first," says Kathleen (who, by the way, was one of our favorite nurses ever), "You know, to make sure that there aren't any leaks or anything."

Well, of course.  This was definitely a wise piece of advice and so we started Jett on his feeds.

BEEP! BEEP! BEEP! The feeding pump kept alarming saying that there was "No FLOW".  What the heck?  This is a new tube and shouldn't be happening.  I grabbed a syringe, filled it with water, and began my attempt to flush the tube.  No such luck.  We had a big problem on our hands. The tube was kinked inside of Jett's body. Cody became livid and I actually kept my cool for the first time ever.

Come to find out, the gastroenterologist never checked his work once the tube was placed.  He literally just put in inside Jett and didn't take an X-Ray or anything to make sure that everything was in its proper place. We were very frustrated to say the least.

"Are you saying I have to get the sleepy medicine again? Ugh!"

Just our luck, the gastroenterologist had left for the day...heck, he probably was already on his way out of Omaha leaving on family vacation.  We called him and he did NOT want to come back into the hospital.  He tried everything he could to make it so that he wouldn't have to come back in.  Cody got even more livid.  The nurses were amazing and were right there to help us.  I'm not sure how it happened, but they got the GI doc to come back to the hospital.

Jett went under X-Ray.  Sure enough, a large kink was seen. The nurses took him right back to the operating room for a SECOND operation.

Jett is the toughest guy we know!  He went through a lot in one day and stayed strong the entire time.  We were able to take him home that night around midnight...just in time for Friday the 13th to be over.

Earlier I had referred to this mistake as a blessing in disguise and it actually was.  The original feeding tube that the GI had placed was way too long for Jett's little body and would have caused him a lot of pain.  During the second surgery, the GI decided to switch for a shorter tube.  Jett has been feeling wonderful this week.  It might be a coincidence that he hasn't experienced the tummy pain that he usually endures, but whatever it is, we are so grateful.  We love our happy, little fighter Jett.