Here is what has been going on in our neck of the woods most recently:
Grandma Sherrie came to stay for two weeks!
She spoiled Jett with lots of kisses and songs...and boy, was she a help to me. I was able to be "ME" every now and again. I went shopping with friends a couple times and even started up yoga again.
Notice how shiny my teeth are?? Haha. Dr. Boseman (there on the right) cleaned my teeth today. I was proud to be his first patient and he did an amazing job. Only poked me twice.
Jett became friends with a minor league baseball team. They sent him a baseball bat
with all of their autographs on it and renamed their team, "Jett's Angels". So cute.
Kusaba has been enjoying spying on and barking at all of the wild creatures in our yard. We live near the botanical gardens which are full of deer, turkeys, squirrels, and raccoons. They like to venture onto our side of the fence and eat our tomato plants. Not cool, Mr. Deer, not cool.
Daddy gives Jett his daily head tickles.
The last two days, the weather here has been actually bearable. The humidity has finally gone down from 100% to 95% (or something like that) and we can actually go outside and lay under our big tree. Jett likes looking up into the trees and smiles when the wind touches his face.
Jett has been getting longer...not fatter, just longer. He is such a bean pole, but at least he is growing! His tummy has been giving him a lot of trouble lately. His stomach ulcers, and who knows what else, have been acting up. Maalox has become our best friend!
Daddy and Jett have continued their daily exercise session. Jett likes to do tummy rolls on the side of our couch or ottoman. Sometimes we even get some smiles out of him. They are definitely a good distraction for when he is experiencing tummy pain...it helps get the farts out. Seriously! And honestly, hearing him fart is like music to my ears because he has such a hard time doing it, but feels SO much better once their out. Oh the little things in life that make me happy!
Peek-a-boo!
I have been blessed to meet some AMAZING friends here! They are so fun and so supportive. This picture was taken on July 4th. Our little neighborhood had a breakfast bash. Notice my hair?? Yeah, the humidity was already at 100% so there was no chance I was going to do anything with it that day. Jett slept through the whole thing. He missed out on some yummy pancakes and bacon.
Kusaba missed out on the pancakes and bacon too, but not on his own accord. He got banished back to the house after trying to eat off of everyone's plates. He hates missing out on all the fun...but don't feel bad for him just yet. Kusaba has pretty much become the community dog and it's awesome. Little neighbor kids come over every day to take him on walks and play ball. He is in heaven! Tonight, he spent about an hour over at our neighbors house playing with their kids. I better start giving him a curfew. He better not think he can stay out late every night. Haha!
I still give Jett his daily kisses. We do our stretches and sing songs. I am still a horrible singer, but Jett doesn't seem to care.
We got a surprise in the mail!! Don't we look so excited?! This package came from Jett's friend, Rudy, who lives all the way across the pond...in England. Little Rudy has Pontocerebellar Hypoplasia as well. Rudy loves looking at fiber optic lights and thought that Jett would like them too...
And he does!!
When Jett is able to focus (so basically anytime he isn't in pain), he loves looking at these lights.
Thanks Rudy!! I will be making a special post about Rudy on Jett's blog. Stay tuned.
The rest of our week will have some UPs and some DOWNs. The "up" is that Cody will be finished with his summer semester on Friday. Whoop whoop! He has been a pathology and biochemistry maniac these past few weeks. I am so proud of him. The fact that he can focus on school (and pretty intense school for that matter) and still take the time to help with Jett is beyond me. I would not be able to do what he does.
The "down" for our week is that Jett goes into the hospital on Friday. He will undergo surgery for a feeding tube replacement. The doctor will also take some pictures of his stomach and take some biopsies. I am also concerned that Jett may have scoliosis and something wrong with his lower intestines. Hopefully we get some answers. We know you always do...but keep us in your prayers! Love you all.
