Hibernation

I have now been working on this post for about five weeks now...and finally getting around to actually publishing it.  You would think that with my title, "Hibernation", that I would have gotten around to publishing sooner!  

It is true, though.  Jett and I are hibernating until spring decides to roll around.

This winter has been nasty; and I'm not talking about the weather.

SICKNESS!

Frankly, we are sick of it, and I bet you would agree.  

EVERYONE has been hit this season including us.  

There is a more detailed account HERE about what Jett dealt with, but let's just say that we are glad that he stuck around.  It was incredibly scary there for a bit and we were worried that we might lose him.  We weren't quite ready for that to happen (we never will be) and he wasn't ready either.  He wanted to show us how strong he really is.  I would prefer to not have him be forced to prove that again.  It takes a toll on everyone.  

Get ready for major picture overload below.  

I did  A LOT of baking over the holidays and loved every minute of it.  I jammed out to the Christmas radio station and test-tasted all of my cookie dough...to make sure it was safe, of course.

 The day before we traveled back to Utah, we found out that my parents' dog, Buddy, passed away.  He was really sick with pneumonia and his kidneys were failing him.  I begged my parents to keep him alive (he had to be put down) for one more day so that I see him, but Buddy was too sick.  

He was such a great dog and companion for my dad.  I always looked forward to taking Buddy and Kusaba for walks together.  They would always try to bump each other off of the sidewalk as they walked.  Oh...and his breath.  He had the stinkiest doggie breath EVER.

I miss him, but he's happy and healthy now in heaven.

The first day back in Utah was a beautiful, sunny day.  Jett and I had some fun in the sun.  He loved feeling the warmth on his face and gave me some good smiles.  This was, of course, before the dreaded sicknesses hit.

Cody's dad, Jerald, turned the Big 6-0 while we were in Utah and we HAD to throw him a surprise party...only because he hates them so much.  A huge crowd showed up to celebrate.   We had fun dressing up in the "photo booth".

Jett was wiped out toward the end of the party and cuddled with his Aunt Tiffany (my sister).  She has the special touch.  Cody and I try to imitate how she tickles Jett's head, but can't do it quite like her.

Tiffany and I were able to spend some quality time together...pedicures, Cheesecake factory, and wearing mustaches as we drove around Salt Lake.  

We spent Christmas up in Logan with my side of the family.  Our Christmas Eve party was definitely something we'll remember...for both the good and the bad.  

The good:  Our White Elephant party.  Let's just say that Cody and I are the king and queen of white elephant gifts.  Is that something we should be proud of??

The bad: This was the night that we discovered that Jett was really sick with something...we just didn't quite know what yet.  Poor baby.

Our first trip to the ER...at Logan Regional Hospital.  Definitely not our favorite hospital, but when you're in a pinch (no pun intended), you go there.  This is where we found out Jett had C. Diff.

By the way, if you understood my pun above, props to you. Hee hee.

Even though Jett was terribly sick, we tried to still make the best of our trip.  As you can see, I let Cody play dentist on me, but I didn't get any happy gas.  Booooooo.

We also went out to eat a lot.  That's what you're supposed to do during the holidays, right?

Second trip to the ER with Jett for some IV fluids...this time at Primary Children's Hospital. 

Back home in Omaha, things took a turn for the worse.  I tried to keep Jett at home throughout his sickness since we have all of the required medical equipment.  However, his lungs began to worsen and I didn't want to chance anything.  Jett ended up at the Omaha Children's Hospital for five days.  It was a little stressful, to say the least, because during his stay, I came down with the flu bug.  I was DOWN and OUT.  The hospital nurses didn't want me there until I was feeling better.  That was somewhat difficult to be laying in bed at home while your baby is deathly ill in the hospital.  Not fun.

            

"I will conquer!!", says Jett.

Flash forward to today, we are on the mend! We are so ready for spring to be here.  Honestly, the winter hasn't been that bad, but I think we need some warmth and sunshine just because.  

 I am super hesitant about going out where there might be a lot of germs.

 I've turned into Mama Bear, so watch out.  

"Put that hand sanitizer on NOWWWWWW!" roars Mama Bear.

Ear Tube Surgery

Yesterday was Jett's ear tube surgery at Children's Hospital in Omaha.  He has been experiencing chronic ear infections and has also failed his most recent hearing tests.  We also noticed that he has been vomiting more often, but it wasn't necessarily related to his reflux.  It seemed that any sort of movement, whether we were picking him up or turning him on his side, would trigger a vomiting episode.  I'm guessing that the fluid build-up behind his ear drums were making him experience some sort of motion sickness.  My poor guy!  

Motion sickness has to be one of the worst feelings in the world...and to have that ALL DAY, EVERYDAY?  Ugh. Not fun.

Ear tube surgery is typically an easy breezy operation and is performed on a routine basis.  It only takes about 10 minutes once the child is asleep.  Adults who receive the surgery don't even have to be put to sleep. We were really excited for this surgery because we knew that it would relieve the pressure in Jett's ears and help him feel better.

One HUGE concern, however, with any type of surgery for Jett, is with anesthesia.  He does not respond well nor can he be given the "normal" anesthetic medications.  

Jett's brain stem is severely affected due to his condition (Pontocerebellar Hypoplasia).  If you can remember clear back to your physiology classes...the brain stem helps regulate body temperature as well as a number of other very important things.  This puts Jett at risk for Malignant Hyperthermia.  If interested, you can read about it here, but just know that it's pretty scary and can be life threatening.

Whenever our anesthesiologists hear that Jett is at risk for this condition, red flags come up everywhere.  They become a little "more on their toes" and aware of the implications of giving Jett the wrong combination of anesthetic.

I have to say...the anesthesiologists here do a FANTASTIC job.  

They are so caring and attentive. I am continually amazed at their professionalism and compassion.

The surgery went wonderfully!  

When the nurses brought Jett back to me, he had cold rags wrapped around his arms and in his diaper to prevent a temperature rise.  He was still really sleepy and would get in such a deep sleep that his heart rate would drop pretty significantly.  However, after a little stimulation, his heart rate would come right back up.

Jett is pretty mad about his mint-green hospital nightgown that he had to wear.  Oh and this is what I look like at 6 a.m. Pretty awesome...no makeup on.

Right after surgery with his cooling rags around his arms.

Just cuddling with his teddy bear

We were able to go home after a few hours and I can already tell that both Jett's hearing and vomiting has improved.  Yay for a happy baby!  That makes for a happy mommy and daddy.

On a side note, whenever I leave the hospital here in Omaha, the nurses all give me a hug and give me words of encouragement.  How nice is that?!  I am a big fan of nurses and doctors and anesthesiologists and enterologists and pretty much anyone in the medical field who knows what they're doing.  

The end.

P.S.  Sorry for the horrible pictures...they were taken from my phone!

We've come a long way

I was just deleting some stuff on my computer and ran into some old pictures.  Although we still aren't in the clear, have many hurdles yet to come, and still have many daily reality checks, I realized for the first time how much our little Jett really has grown.

He hasn't put on much weight in 9 months of life but who cares (we were so concerned with this for a long time) He has accomplished so much in his inspired short life so far. Here is what he has accomplished so far:

-He dealt with us as 1st time parents, and not knowing his specific needs the first 8 weeks of life before we knew that he had some special things that we needed to do for him.
-Against all odds (PCH and cleft lip/palate) he learned how to eat out of a bottle for the first 2 months of life (he was never supposed to be able to do this)
-He dealt with a nasal feeding tube and an oxygen tube for 2.5 months
-He has taught doctors, nurses, techs, parents and pretty much anyone that encounters him, that size is NO indicator of strength… He is one strong little guy
-He is the first Boseman to EVER have an 8 pack, and the youngest Boseman to grow a mustache (loved his stache)
-He experienced his first of many surgeries by having his cleft lip repaired by an amazing surgeon (Dr. Morales) (although the lip repair was incredible, this is what ultimately ruined his mustache...)
-2 weeks after his 1st surgery he had his feeding tube installed into his tummy
-He made his 1st cross country move, and had the opportunity to go on his first airplane ride (thanks to some amazing friends)
-He endured a doctor making a stupid mistake, so he had his tummy button installed 2 times instead of 1.
-He has doubled in size and now weighs in at 13 pounds
-He has traveled the world (see his blog for all those details)
-He visited with his buddy Glenn Beck
-He has inspired many people world wide.  We have heard many of the inspiring stories but I know there are many I haven't heard. Secondarily to this, we have learned that there are really some incredible people out there that are filled with compassion.
-He has taught us about the world of raising a special needs child, and introduced us to some equally amazing angel babies.
-He has solidified the fact that prayers are heard and answered

-He has grown, fought, inspired, and learned with such an amazing little attitude over the last few months.  We are so proud of him.

Here are a couple pics I just found from when he was younger:

And here are some more recent ones.  Growing up:

If you have any more accomplishments that I didn't cover, Please feel free to remind us of them!  Thanks

Our Friday the 13th Story

Everyone has to have a Friday the 13th story, right?  Well leave it up to me to schedule surgery for Jett on that day!  To tell you the truth, looking back, we feel like what I'm about to tell you was a blessing in disguise...but I'm going to keep you in suspense for a minute.

This week has been absolutely amazing!  Cody has summer break and is FREE for a whole month.  Can you believe it?  I have him all to myself and I love it.  Normally, we would plan a fun get-a-way or take up some flying lessons again.  Well, with Mr. Jett, we are unable to do that kind of stuff right now.  He likes to keep us on our toes and close to a hospital.  Even though we have stayed home this week, we have made the best of it.  Cody has worked on our basement theater room and I have enjoyed organizing our storage room.  By the way, I'm not kidding when I say "enjoyed". Organization makes me happy.

We have tried to take Jett out each day to run errands, but we don't go too far.  If Jett got his way, I think he would choose to stay home and cuddle with his fuzzy blanket while looking at the ceiling fan. No joke.  He loves that thing.  Anyway, one day we were feeling adventurous and bought Jett his very first swimsuit.  We took him for a "dip" in our neighbor's swimming pool.

He tolerated the not-so-warm water pretty well, but was sure to give us some mean faces every now and again.

Now for our Friday the 13th story...it began on a cold, stormy night.  Ha!  We wish.  It actually began in 105 degree weather with 100% humidity.  Yes, a true nightmare.  Anyway, as I mentioned, I scheduled a surgery for Jett.  His current feeding tube was falling apart and was just not doing the job.  The only way to change it was for him to go under anesthesia and have the gastroenterologist (who will go unnamed) place a new one. Ugh. We dislike anesthesia with a passion.  Jett has always had some sort of "reaction" to it.

We spent two hours prior to the surgery talking with the anesthesiologists and meticulously planning the procedure so that Jett would recover better than he has in the past.  They were extremely efficient and wanted to make sure that Jett was as safe as he could be.

The surgery took place at 2 p.m. and Jett recovered remarkably well.  This was a Friday the 13th miracle!  It was now 5 p.m. and the nurses were ready to discharge us...we were seriously so excited that Jett didn't have to spend the night at the hospital. 

"Let's start him on his feeds first," says Kathleen (who, by the way, was one of our favorite nurses ever), "You know, to make sure that there aren't any leaks or anything."

Well, of course.  This was definitely a wise piece of advice and so we started Jett on his feeds.

BEEP! BEEP! BEEP! The feeding pump kept alarming saying that there was "No FLOW".  What the heck?  This is a new tube and shouldn't be happening.  I grabbed a syringe, filled it with water, and began my attempt to flush the tube.  No such luck.  We had a big problem on our hands. The tube was kinked inside of Jett's body. Cody became livid and I actually kept my cool for the first time ever.

Come to find out, the gastroenterologist never checked his work once the tube was placed.  He literally just put in inside Jett and didn't take an X-Ray or anything to make sure that everything was in its proper place. We were very frustrated to say the least.

"Are you saying I have to get the sleepy medicine again? Ugh!"

Just our luck, the gastroenterologist had left for the day...heck, he probably was already on his way out of Omaha leaving on family vacation.  We called him and he did NOT want to come back into the hospital.  He tried everything he could to make it so that he wouldn't have to come back in.  Cody got even more livid.  The nurses were amazing and were right there to help us.  I'm not sure how it happened, but they got the GI doc to come back to the hospital.

Jett went under X-Ray.  Sure enough, a large kink was seen. The nurses took him right back to the operating room for a SECOND operation.

Jett is the toughest guy we know!  He went through a lot in one day and stayed strong the entire time.  We were able to take him home that night around midnight...just in time for Friday the 13th to be over.

Earlier I had referred to this mistake as a blessing in disguise and it actually was.  The original feeding tube that the GI had placed was way too long for Jett's little body and would have caused him a lot of pain.  During the second surgery, the GI decided to switch for a shorter tube.  Jett has been feeling wonderful this week.  It might be a coincidence that he hasn't experienced the tummy pain that he usually endures, but whatever it is, we are so grateful.  We love our happy, little fighter Jett.